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EURORDIS Seeks Members for Digital Health Advisory Group

Rare Diseases Europe (EURORDIS) has announced a call for applications to join its Digital Health and Data Advisory Group (DAG). The group aims to...

Rare Diseases Survey by EURORDIS to Explore Social Participation and Independent Living

Rare Barometer, a key survey initiative by EURORDIS – Rare Diseases Europe, will unveil a significant new survey focusing on social participation and independent...

Rare Diseases Advocacy: EURORDIS Launches ActRare2024 to Enhance EU Healthcare Policies

Rare Diseases Europe (EURORDIS), a leading advocacy group, has launched the ActRare2024 campaign, aiming to shape European healthcare policies to better support the 30...

Survey Highlights Strong Support for Newborn Screening in Rare Disease Community

Rare Diseases Europe (EURORDIS) has released key insights from a major survey focusing on newborn screening for rare diseases, executed under their Rare Barometer...

A Blueprint for Modernizing the European Single Market: Proposals for a Unified Healthcare Strategy

Former Italian Prime Minister Enrico Letta unveiled a comprehensive report commissioned by the European Council in June 2023, titled 'Much More Than a Market,'...

European Disability Card Approved, Boosting Access and Mobility Across EU

Rare Diseases Europe (EURORDIS) has expressed its satisfaction following the European Parliament’s recent approval of the provisional agreement on the European Disability Card along...

European Parliament Votes to Transform Pharmaceutical Laws for Rare Diseases

The European Organisation for Rare Diseases (EURORDIS), a leading voice for patients with rare diseases, has expressed strong approval following the European Parliament's latest...

COVID-19 Vaccine Workshop Sets Global Standard for Timely Updates Amid Evolving Virus Challenges

A newly published report by the International Coalition of Medicines Regulatory Authorities and the World Health Organization (WHO) has highlighted key outcomes from a...

Global R&D 2024 Report: Future of Biomedical Research and Development in the Post-Pandemic Era

The "Global Trends in R&D 2024" report outlines the current state and future directions of biomedical research and development, underlining the resilience and adaptability...

Enhancing EU Healthcare Access: Urgency for More Biologic Competition and Biosimilars Medicines

The future landscape of healthcare systems in Europe is poised for a transformation led by biosimilar medicines. Forecasts indicate that by 2032, biosimilars will...

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