Cancer treatment facilities are increasingly recognizing the importance of collecting sexual orientation and gender identity (SOGI) data to improve patient outcomes. Despite national recommendations, the integration of SOGI information into clinical practice remains inconsistent across oncology centers.
Implementation Strategies Drive SOGI Data Collection
The study analyzed practices from 23 diverse oncology institutions, predominantly academic and urban-based. Findings reveal that external mandates and the incorporation of SOGI fields into electronic medical records significantly encourage systematic data collection. Leadership support and the perception of SOGI data as clinically relevant also play crucial roles in facilitating comprehensive data integration.
Challenges and Partial Adoption Highlight Areas for Improvement
Nearly half of the surveyed centers only partially collect SOGI data, often relying on champions and specific training programs to drive these efforts. Sites that have not adopted SOGI data collection unanimously indicated that top-down mandates or policy requirements would be necessary to initiate widespread implementation. The variability in data collection practices underscores the need for standardized approaches and continuous education for healthcare providers.
• External mandates and structured workflows promote consistent SOGI data collection.
• Leadership endorsement and clinician training enhance the integration process.
• Partial adoption relies heavily on individual champions and perceived relevance.
• Absence of mandates hinders the initiation of SOGI data practices in some centers.
Integrating SOGI data into oncology practices offers a pathway to more personalized and effective patient care. By understanding the diverse backgrounds and identities of patients, healthcare providers can tailor treatments and support services that address specific needs. However, the inconsistent adoption of SOGI data collection highlights a significant gap in standardized healthcare practices. Developing comprehensive training programs and establishing clear policies can bridge this gap, ensuring that all oncology centers can benefit from the nuanced insights that SOGI data provides.
Future efforts should focus on creating universal guidelines for SOGI data collection and utilization within clinical settings. Additionally, fostering an inclusive environment where patients feel safe and respected in sharing their identities can enhance data accuracy and reliability. As the medical community continues to prioritize patient-centered care, the systematic incorporation of SOGI information will likely become a cornerstone of effective oncology practice, ultimately leading to improved patient satisfaction and health outcomes.
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