Challenges in Disability Card Access for Rare Diseases Prompt Calls for Inclusive Criteria
There are apprehensions that many individuals living with rare diseases might face difficulties in obtaining the card due to stringent disability assessments that fail to recognize the diverse and often invisible disabilities within this community. Castro highlighted that 53% of people with rare diseases face inadequate assessments, which could impede their access to the benefits of the Disability Card. As eligibility criteria are defined by Member States, there is a risk that those with less common or less visible disabilities might be excluded from obtaining the card.
In response to these challenges, EURORDIS has called on all Member States to adopt inclusive eligibility criteria. They also emphasized the importance of establishing robust mechanisms during the transposition and implementation phases to ensure that no one is left behind. The overarching goal, according to EURORDIS, is not only to issue the cards but also to recognize and address the diverse needs of all people with disabilities across Europe, facilitating their social participation and access to a variety of services.
Resource: Rare Diseases Europe, April 25, 2024

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